Its been a long time

As my nerves in my body prick me like needles I sit here thinking how things used to be.

I get sick sometimes, these things happen and I don’t expect much. Hell I prefer to be left alone

But… you of all people. You know I am in pain, you know what I am going through and you just don’t care anymore.

I wonder if it is the years of growing up seeing me like this you have given up caring? Or is it that you have found someone else more deserving of your time and affection?

Maybe it’s me? Maybe I am the one giving up and giving into the pain. Letting myself drown in it.

I wish for things to go back to the way they were or even better, pain free!

 

I think it’s the cold talking?

Maybe I am going a bit crazy or the fact that I am sick and I am tired of being sick. I already have chronic pain and then to have this three week “cold” on top of it has pushed me over the edge. My Dr. today tested me for whooping cough of all things. I just about died… Of course I am allergic to the DPT vaccine so when he tells me it looks like and sounds like I have it and need to be tested for it I scrunch into a ball and say NOOOOOOOOO!

Next came the horrible test where he tries to stick 6 inch Q-tips down my nose. I have to laugh at this because he tried and I swatted his hand away. So we tried again with this time getting in only a little further. He looked at me like I was a bit crazy and said we needed to do a bit better. So we tried again. Well, after about a half dozen times trying we were done. With one side!

I don’t understand what was wrong with me today? I have been poked and prodded for years because of my brain disorder but today the thought of something going up my nose was not going to happen. I should have been stronger and told my brain that I needed to do what ever I had to, to stop coughing. To stop being sick…

 

Imperfections

From the dark circles under my eyes

to the weight that goes straight to my thighs

My stringy hair, with that hint of gray

My memory less and less with everyday

Those unforgiving “old spots” on my face,

Somedays I would give anything to just erase!

Each and every imperfection makes me unique

Makes me who I am. Take your imperfections each of you

Find something you like about them, I dare you to.

Why Mock Me

Does it make you feel better to put me down? You pretend to support me and tell me you want me to get out in the world and try new things but when it comes down to it all you do is belittle me, make me feel stupid. You mock me! Why? I have finally come up with a new way to get out of my box. Instead of watching others live I want to live. Does it scare you? When I decide I wanted to start this new journey in my life I promised myself I would not allow anything or anyone to get in my way. You will not get in my way. Get onboard and enjoy the ride or jump off and watch from a far. Either way you will not effect the way I feel about myself. Or stop me from trying new things in life. Life is to short!

Realizing I wasn’t negative but the People I surrounded myself around

Let me tell you it was a mind blowing realization. To know that its not me but them. How might you ask did I figure this all out? That its really the people I was around and their negativity rubbed off on me. Well, once you remove all the people from your life with black souls, hatred, daily negativity. Your left with your self. With the positive people in your life and you decide if you are good or not. I love life, I love my family and friends. I have good days and bad just like everyone else but to see life as happy as I do now is great!

I always have told my children to surround your self around people that are good and people that will treat you the way you want to be treated. Why did I not listen to my own words? Now I do!

Who Knew??

So I broke down and finally went and saw a pain specialist. I gave him the list of my meds, my medical procedures, surgeries, my migraine chart and on and on.. I did not know what would happen. He was pretty good, he came up with some great ideas and noticed that night time was one of my hardest times of the day. I don’t sleep, making it so I am in more pain in the morning. He prescribed me another seizure med right before bed and so far every night I up the dose until I am at the right dose. I sleep great, and this is why I am blogging this. With over 8 years of chronic pain I have had two days of less pain days!!!!!!!! I am talking about I wake up in the morning and my head feels almost numb. I don’t have a headache or migraine for the whole day. It is unheard of.. It has been a long time. Who knew it would take two seizure meds to fix me. Love it!! I am a realist and know that this might not last forever so I am enjoying every day as in comes.