My appointment is set for march 13th with a specialist at UW. She is in the headache clinic and right now is working with people with Arnold Chiari! Feel blessed to get in with her but scared at the same time. For anyone that deals with a brain disorder or daily pain, waiting months can seem forever. My neurologist has upped my topamax to 200mg daily added muscle relaxers to my pain meds, sleeping meds, nausea meds, maxalt.
I start my third round of Botox in a few weeks. Haven’t really noticed much from the first two rounds but was told by my neurologist to not expect much until the 4th round of treatment. Crossing fingers that something works.. I’ve had a few surgeries, medical procedures, and lots of meds but so far nothing has clicked for my daily headache, multiple migraines a week. So much pressure..
It will be interesting to see what happens over the next few months for me. How I will keep this pain to my self and live my life, raise my children, be a good wife, run a business, oh.. Keep a clean house and cant forget about the most important things. Cooking meals and LAUNDRY!! Try to smile while doing it because no one wants to see me in pain, sad, or angry. The mask must go on for a few more months.
I would love to hear how other people do it. Even if you don’t have Adult Onset Arnold Chiari, or a brain disorder at all. If life is just rough. How do you make it through some days?