I think it’s the cold talking?

Maybe I am going a bit crazy or the fact that I am sick and I am tired of being sick. I already have chronic pain and then to have this three week “cold” on top of it has pushed me over the edge. My Dr. today tested me for whooping cough of all things. I just about died… Of course I am allergic to the DPT vaccine so when he tells me it looks like and sounds like I have it and need to be tested for it I scrunch into a ball and say NOOOOOOOOO!

Next came the horrible test where he tries to stick 6 inch Q-tips down my nose. I have to laugh at this because he tried and I swatted his hand away. So we tried again with this time getting in only a little further. He looked at me like I was a bit crazy and said we needed to do a bit better. So we tried again. Well, after about a half dozen times trying we were done. With one side!

I don’t understand what was wrong with me today? I have been poked and prodded for years because of my brain disorder but today the thought of something going up my nose was not going to happen. I should have been stronger and told my brain that I needed to do what ever I had to, to stop coughing. To stop being sick…

 

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Lets Be Real With Each Other, Right Now…

What I can say to you but not to my 15 year old son.

Driving him to school today we passed some kids at a playground. He looks over and says “How cool would it be to be little again”. I agreed. To go back to a moment, a day, or a time in your past that is your favorite. He said. I would choose 5 years old but with all of the knowledge I have now”.

As I am dropping him off I give him a hug, say I love you. What is really running through my head was 5 years old would be the last age I would pick. I know everybody has a past, everybody has a story but for me in my life at age 5 was when life ended.

Im not saying that I haven’t had some horrific shit happen after but I think when your older you can cope. When your little you don’t understand whats happening around you. Before 5 I had what seemed a “normal” family, a “normal” life.

Christmas was coming around, my Papa (my mom’s Dad) Passed away suddenly of a heart attack. He was one of the most important people to me in the world. Within weeks my Dad left. I was not aware at that time he had been cheating on my mom and he made the choice to leave our family. Who knows, the stress from my father cheating on my mother could have resulted in killing my papa?? His baby girl being hurt like that…

My mom had graduated high school from a small town, joined the military during Vietnam war were she met my dad. They married and had five beautiful children. She became a house wife. When he left she found herself alone, never worked a day in her life… She had 2-3 jobs at a time to keep us in our house, fed clothed and off welfare. My dad did very little to support us.

My oldest sister moved out, got married. My oldest brother moved to Arizona for school. My best friend across the street and his mom who was like a second mother to me moved away. So here I am going from life as I know it to No Dad, No Mom, No Brother, No Sister, No Friend, No Papa, No One to count on, to depend on…

My Brother Jon and Peder were only a couple years older than me. Jon had to grow up fast, he became the man of the family. Even though he wasn’t old enough. Not by maturity, by age or by the laws standards but if he hadn’t stood up and helped raise my brother and I don’t know if we would have all made it? My mom did her best but he was the glue that held us all together. He made sure we got on the bus, got off the bus safe, had breakfast, he even learned how to cook dinner. Cleaned the house and would even get us to kick in. Mom had to get sleep in between every job. She was either at work or sleeping.

My mom went from a stay at home mom baking cookies, going to all the school functions, cooking all of the meals, being there for everything to being absent. She had to work! I remember I would fake being sick sometimes just so that she would have to leave her job and pick me up and take me to work with her for the whole day! It would frustrate her but then I knew that her and I would get to have alone time. It was the only alone time I remember having at that age. She had a job at a chemical factory where she had a desk in the middle of a huge warehouse. It was so cold, she would sit me next to her and this little space heater. I remember getting orange juice from a food truck. That was one of my happiest times with my mom, I was with her.

I failed that year at school. Even when I was there I was checked out. I learned nothing, I cared about nothing. It is so hard to care about school when your life changes so much.

My memories of my Dad at that age were that if we wanted to see him we had to call him to set something up. How is that fair to put that on your children? I was five years old, I didn’t know what was going on. My mom Bless her, never said one bad thing about my father. That was one way she protected all of us was by not speaking about what happened between them. Their business was their business. I did hear her cry some nights. I cried myself to sleep so many nights feeling so alone. Feeling as if everyone had left me and not understanding what I had done wrong to make everyone leave.

I would Pray to my Papa every night for years to come home. That he could fix everything. That everything was ok when he was alive… My Mommy and Daddy were together my family was whole.

If I could pick any age it would not be 5 unless it was to warn myself that life was going to be rough for awhile but good things come out in the end.

Not alone anymore…

I have know that I am not alone but in away when you have a “crazy” person in your life you feel alone. Others do not understand that this person could really do the things I tell them, you seem so unreal. Why? Why is it so hard to believe. I will tell you. Because you and I do not think like this “crazy” person. Our mind is not built like this “crazy” person. We would never hurt people, we would never plot or make plans to destroy “crazy” person or anyone for that matter even if we didn’t like the person. We spend our days living!! We spend our days with loved ones, our husbands, children, family, FRIENDS! People we care about, relationships we want to build and nourish. “Crazy” person spends the day filled in a hole of sadness trying to figure out how to bring everyone one else down. Coming up with ideas of how to hurt the people in and out of their life. Coming up with lies to cover up the other lies they have already told. You think that we are angry with you? You think that we are out to get you? I know this might be hard to hear but we feel sorry for you. The only feeling I have for you is pity. The only action I want is for you to be out of my life forever. Deep down you should even know better, you were once my friend. I would never do anything to harm you, your property, your family. I don’t have that in me. I think that is something you see as a weakness. The christianity in me, the forgiveness, the fact that I can move on where you sit and stew over everything and not only that, you also feel that everything that is done in life has been done TO you. Every person in your life has hurt you.

WAKE UP!!!!! This is getting old.. You playing the victim. People are starting to see the truth and the more people that see it, believe it and realize all the lies you have said about them how is that going to work out for you?

Why would you want to live your life a victim anyways?? It doesn’t make sense? How does that make you look as a women, a mother? I’ll tell you, pathetic. All you have done is alienate every single person that has come into your life. Your friendships and I might say even some family members are like a revolving door. They come in, smell your shit and walk right out.

My hope for you. Stop being a victim. Take r.e.s.p.o.n.s.i.b.i.l.i.t.y for the decisions you make in life. and yes I spelled it out for you because I am not sure you have ever heard the word before.

The purpose of this blog was something completely different and I went on a sideways rant.. What I was going to talk about, I met somebody Just like me. She has gone through the same things I have. She knows what I am talking about and it all makes sense to her. Its shocking how our stories are all the same and even the lies “crazy” has made up all sound alike. Its shocking to me how people believe the shit that is said.. But if people are going to believe lies good for them. I can not control others and I am not interested in trying. I am happy living my life to the fullest! Each day better than the last. Nobody can take away my happiness. You may have all the money but what is that going to do when we are all dead and gone? Nothing! You cant take it with you. Do you think anyone is going to cry when you are gone? Not really. It is about the relationships you make now, family, friends, the connections we have now until the end! Money wont make you happy but good luck trying.

Going into the unknown…

I guess anything worth doing is worth doing right. But what happens when you do not know what the right decision is? You are at a crossroad and each road could take you down completely different paths. Do you just blindly go and hope for the best? Or carefully go through every little detail and hope that you make the right choice?

Ever since I was a little girl and my Papa died and then my father left me I have had strong feelings of abandonment. With that comes the fear of change, the unknowing. I am sometimes a realist, I know things can not and will not stay the same for ever but when your life is going along day to day and things are happy and all of a sudden BOOM, Change! Its a harsh reality and at that point makes you wonder whats next? What else am I going to lose, or what else is going to change in my life tomorrow if tomorrow even comes?

I wish I could go back to when I was a child sometimes. Before my papa died, and before my dad left me. Before my mom who was at that point a stay at home mom had to then get 2-3 jobs at a time to support us, to keep us fed and in our home. If I could relive any moment in my life I believe I would choice that moment when life was calm and I did not have to make the grownup decisions for my family.

Now its unto me… What road do I take? Do I go blindly or think careful about every decision I make.

My Sally

People come into our life at the time we need them the most 

Stop looking, shut your eyes, it will happen

It might even be someone you wouldn’t expect

I just lost one of my very best friends and with her she tried to ruin my marriage. Along with that I was feeling alone, sick, in pain, and very confused.

Out of nowhere I get an email from Sally… My elderly neighbor. She had heard that I was having some health problems and offered to watch my daughter and help out anytime I needed her. She had Migraines when she was my age. Knew how hard it was to raise children while she was in so much pain.

Weeks have gone by and I have thought about Sally. I have a Dr. appointment today for my third round of Botox, yesterday I spent the entire day in the ER and I feel like crud. I called Sally. She was so loving, so caring and wanted to know how she could help. She would love to watch Issa for me and she already has crafts planned. Suggested different meds that her and her daughter had used in the past. The entire talk was so uplifting. 

I decided everyone with chronic pain needs their own Sally. Find someone in your life that knows what you are going through. That can talk to you and truly know how it feels! Only someone who has gone through it, experienced it can truly understand. 

Thats my Sally 

Spinal Taps Anyone?!?!

 Its been about a year now since one of the worst days of my life. I can tell you I have been through some crazy shit in my life! Not to mention Daily Pain!! But… when my neurologist and I start twiddling our thumbs and come up with something else that just might work, just might be the answer. I say “Lets do it, It cant be worse then what I am already dealing with every day of my life!” So that is where the spinal tap comes in. We thought it would be good to see what level my spinal fluid was at in my brain. I thought, why not! I’ve had to babies and both times had an epidural. Same thing, right? Wrong! 

I go to the Hospital, Lay down, a big TV screen so I can watch. (more for him, but it was in my face) He warns me that the lidocaine  he is going to use on my back doesn’t have a buffer because they ran out and could only use the good stuff on children so suck it up. When I asked if people could get put under anesthesia? He said thats absurd! He was almost upset sounding when I asked. 

My mom had to wait behind the glass. the nurse held my hand. I laid very still. Tears streaming down my face. Trying not to scream out in pain. The needles start going in one after another. Then he starts the spinal tap. I can feel it but I am not going to say anything. Tears still running down my face… 

After he is done I get the instructions from the nurse. My mom drives me home. The look on her face. Kills me to this day. I get home and it hits me… The spinal headache. Of course, I am going to get the spinal headache! I start taking meds. Nothing works. So now my spine hurts, I am vomiting and the worse headache ever!! I call the Dr and he tells me to try and make it through the night. My mom gives me some pain meds, sleeping pills. I take everything.. She wouldn’t leave the rest knowing I would over dose. Guess what, I would have! 

The next day I tried all day, I waited and waited and it wouldn’t go away. So I called my mom and she brought me back to the hospital. Now the Dr was really pissed. He was going to miss his Daughters recital because of me. Well maybe he should have done it right the first time? Now he gives me a blood patch.. So gross! They take blood from my arm and inject it in my spine below the hole in my back that is leaking fluid. A blood patch.

Guess if it worked… Nope! It actually caused extreme lower back pain and I was on bed rest for a WEEK! Plus the spinal headache was still going on. 

The first and only time in my life that I prayed to just die! For an entire week! When I am in pain I will pray to get better or focus on something else but the pain was so bad. So intense and nothing they could do. I just wanted to die. I couldn’t even think about my children, my husband, my family. All I could think about was Please end this pain. 

Every time since when My neurologist and I sit down and start coming up with “the next great plan” We leave out spinal tap! 

*BTW My levels were three times higher then normal but not high enough to where he thought I needed surgery at the time. Thankful for that