Funny thing about freedom of speech… You Don’t Own It!!

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I may not like what you have to say. You may not like what I have to say but that is the beauty of being FREE!! Say what you want! What I won’t do is spread lies and talk poorly of others. Not only does that make you look like a shitty person when you act like that, why would you take time out of your life to make people feel bad about themselves? Spend time bringing people up in life! Make it a goal to do something positive even if it reaching out to one person a day to say something nice! I guarantee people will start taking the time out of their life to reach out to you! If enough of us do it emagine what could happen?

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My Sally

People come into our life at the time we need them the most 

Stop looking, shut your eyes, it will happen

It might even be someone you wouldn’t expect

I just lost one of my very best friends and with her she tried to ruin my marriage. Along with that I was feeling alone, sick, in pain, and very confused.

Out of nowhere I get an email from Sally… My elderly neighbor. She had heard that I was having some health problems and offered to watch my daughter and help out anytime I needed her. She had Migraines when she was my age. Knew how hard it was to raise children while she was in so much pain.

Weeks have gone by and I have thought about Sally. I have a Dr. appointment today for my third round of Botox, yesterday I spent the entire day in the ER and I feel like crud. I called Sally. She was so loving, so caring and wanted to know how she could help. She would love to watch Issa for me and she already has crafts planned. Suggested different meds that her and her daughter had used in the past. The entire talk was so uplifting. 

I decided everyone with chronic pain needs their own Sally. Find someone in your life that knows what you are going through. That can talk to you and truly know how it feels! Only someone who has gone through it, experienced it can truly understand. 

Thats my Sally 

Journey on

My appointment is set for march 13th with a specialist at UW. She is in the headache clinic and right now is working with people with Arnold Chiari! Feel blessed to get in with her but scared at the same time.  For anyone that deals with a brain disorder or daily pain, waiting months can seem forever. My neurologist has upped my topamax to 200mg daily added muscle relaxers to my pain meds, sleeping meds, nausea meds, maxalt. 

I start my third round of Botox in a few weeks. Haven’t really noticed much from the first two rounds but was told by my neurologist to not expect much until the 4th round of treatment. Crossing fingers that something works.. I’ve had a few surgeries, medical procedures, and lots of meds but so far nothing has clicked for my daily headache, multiple migraines a week. So much pressure.. 

It will be interesting to see what happens over the next few months for me. How I will keep this pain to my self and live my life, raise my children, be a good wife, run a business, oh.. Keep a clean house and cant forget about the most important things. Cooking meals and LAUNDRY!! Try to smile while doing it because no one wants to see me in pain, sad, or angry. The mask must go on for a few more months. 

I would love to hear how other people do it. Even if you don’t have Adult Onset Arnold Chiari, or a brain disorder at all. If life is just rough. How do you make it through some days? 

Learning to help myself

Why did I start blogging? I’m a private person and in no way educated enough to write a great story. Or at least that is how I perceive myself. Resently I started talking to an amazing women Andrea. I get great insight from what she has to say. She motivates and keeps me going. The last time we spoke she told me that I am teaching her something’s as well. I never thought my life could be a lesson for others..

I want to find others that are going through this with me. Maybe then I won’t feel as alone? Knowing other people are out in the world right now feeling the same way. I have no reason to feel ashamed. That might sound weird but it’s hard to describe all the feelings one can have when their head is in constant pain.

Blogging will be one way that I help myself:) getting out my feelings. Sharing how I feel even if I don’t share that I have a blog with any of my friends and family because I’m chicken shit.. I can still feel good that I am doing something I want to do.